"The North Star is a Powerful Symbol of Guidance and Direction that Reminds Us to Stay True to Ourselves and Follow Our Own Path, Even in the Darkest of Times."
#makerarevisible
No events at the moment
1 in 10 Individuals Will be Diagnosed with a Rare Disease in their Lifetime.
​
There are Currently More than 10,000 Identified Rare Diseases Impacting More Than 300 Million People Worldwide.
​
Any Disease Impacting Fewer Than 200,000 People in the US is Considered Rare.
​
25 to 30 Million Americans are Living with a Rare Disease.
​
Many Rare Diseases May Result In the Premature Death of Infants or Can be Fatal in Early Childhood.
​
All Pediatric Cancers are Rare.
​
There are More Than 500 Rare Cancers.
​
More than 90% of Rare Diseases are Without an FDA Approved Treatment.
​
Rare Diseases Affect an Estimated 350 Million People Worldwide.
* Statistics from the National Institute of Health
Granting Wishes
Our wish granting program brings joy and hope to individuals with a rare disease. Through the power of community and compassion, we make dreams come true.
💜 Wish Application Update: At this time, Rare Wish has placed our Wish Applications on hold.As a very small nonprofit with limited funding, we simply do not have the resources to grant new wishes right now. While we would love to provide “big” experiences like Disney and other travel wishes, we are not there yet. Currently, we are grateful when we are able to grant even one wish a year.With national grant funding being reduced and donations coming in slowly, smaller nonprofits like Rare Wish face the challenge of competing with larger organizations for the same dollars. Because of this, we have decided to pause accepting new wish applications until our funding increases.💌
Please know: We will keep all applications already received on file. Once additional funding becomes available, we will review those applications first before reopening the window for new requests.Our heart and mission remain focused on giving back to the rare disease community — not requesting from it. Thank you for your patience, understanding, and continued support as we work together to #MakeRareVisible.
Sunny the Rare Bear
Meet Sunny, our Rare Bear who brings love and sunshine to those in need. Adopt a bear today and help deliver hope to individuals with rare diseases. Inspired by CEO Trena Myers’ personal journey and the comforting gift of a bear, Sunny was born from a legacy of hope.
​
The story behind Sunny the Rare Bear was started as a Legacy Project for Trena. A friend of hers sent the original one to her to cheer her up after the passing of her father. The bear brought Trena joy and Hope, so she knew that she had to get this bear into the hands of others who were hurting like her.
Together, Trena and founder, Beth Nguyen came up with the name of this rare bear, Sunny, because he brings you lots of love and sunshine.
Donate via our Wish List or click the donate button and share the joy. 'In every heart, there's a spark of hope waiting to shine.
​
Nominate someone rare to receive a Sunny the Rare Bear below.
(Once you adopt a bear, it will be sent to an individual with a rare disease.)
​
🧸 Sunny the Rare Bear – Nominations Paused
At this time, we are pausing new nominations to receive Sunny the Rare Bear.
In less than 90 days, we were able to make and place 10 Sunny Bears into loving homes — and now, we have a waiting list of families hoping to welcome one too. To continue, we are seeking a volunteer (or small group) to help us sew and assemble new bears so that more rare warriors can experience the joy of Sunny.
Once we have additional volunteer support in place, we will reopen the nomination window and begin matching Sunny Bears with their new families.
💜 If you or someone you know is interested in helping us #MakeRareVisible by volunteering your time and sewing skills, please contact us at info@rarewish.org.
Thank you for your patience, support, and love for Sunny the Rare Bear!
Make a donation
Donating to Rare Wish is a meaningful opportunity to make an impactful difference in the lives of individuals with rare diseases. Rare Wish is dedicated to granting heartwarming wishes and delivering joy through Sunny the Rare Bear, offering comfort and hope to those facing challenging health journeys. Your contribution not only supports the operational needs that ensure the seamless delivery of these wishes but also directly impacts the well-being of recipients. By supporting Rare Wish, you become a vital part of a compassionate community dedicated to uplifting spirits and creating cherished memories for individuals and families navigating the complexities of rare diseases. Your generosity helps transform dreams into reality, offering a beacon of light and kindness when it is needed most.
Amount
$20
$25
$50
$100
$500
$1,000
$5,000
$10,000
$40,000
Other
0/100
Comment (optional)
Sponsors:
​
YOUR LOGO HERE
.jpg)
Sponsorship Opportunities
Rare Wish is a nonprofit (501 (3)c) organization that is dedicated to granting wishes to children and adults who have been diagnosed with a rare disease and funding clinical innovation to support patients and families impacted by rare diseases. As a non-profit organization, Rare Wish relies heavily on the generosity of sponsors and donors to grant wishes and foster innovative programs and services for these deserving individuals.
​
Sponsorships are so important to Rare Wish because they provide the necessary funds to grant wishes and make a difference in providing trustworthy resources, medical education, and ongoing clinical innovation. Without sponsorships, Rare Wish would not be able to continue its mission of bringing joy, hope, and happiness to children and adults; many are facing some of the toughest challenges of their lives.
​
Sponsors also play a key role in building awareness and support for Rare Wish. By sponsoring an event or program, sponsors help raise awareness about the important work that Rare Wish does, and they help encourage others to get involved and support the organization too.
​
Overall, Rare Wish depends on and appreciates sponsorships because they are essential to the organization's ability to fulfill its mission and make a positive impact on the lives of children and adults who deserve quality of life and excellence in all areas of healthcare.
